âBecause ME/CFS has a history of being seen as a diagnosis of exclusion, many people get stuck having to rule every other relevant diagnosis by receiving full work-ups and often extensive lab testing in endocrinology, rheumatology, infectious disease, neurology, psychiatry, and other medical specializations as well. âDo your research ahead of time. Verywell Health suggests that, if your primary care doctor isnât well versed on the illness, then ask for a referral. âWhile the number of doctors I saw is painfully normal for many who will ultimately get this diagnosis, I had parents, including a mother who is a nurse, able to help me jump through the hoops in the medical system compared with others. The negative impact of the psychiatric model of chronic fatigue syndrome on doctors’ understanding and management of the illness. We at CO Cure are committed to dedicating our lives towards helping people that are diagnosed with Chronic Fatigue Syndrome (CFS). All rights reserved. It requires surrounding yourself with people who love you and who will aid in your recovery, who will deliver groceries to you, or who will spend time with you at home when youâre too sick to go out. The experience of chronic fatigue syndrome varies from person to person. The Provider Directory is provided on an "AS-IS" basis. Many sufferers … Given that ME/CFS is still so often misunderstood in the medical field, arming yourself with both knowledge and support is key. You can ask the local hospitals and clinics, if they have referral services. You will find local support groups in the area in which you live that will be able to find qualified doctors. This is helpful for the doctor and will make them take your case seriously. Lastly, treat your first appointment as a way to gauge if the doctor is right for you. Of course it’s imperative to find a doctor that is proficient, also someone you will be able to trust. Finding a doctor who can treat CFS/ME effectively can be a frustrating feat for patients, since many physicians donât fully understand the condition, but it can be done. The illness may also involve underlying genetic risk factors. They basically rule out every other possible illness, while observing the symptoms that the patient is reporting in order to conclude that ME/CFS is the underlying disorder. Doctors for Chronic Fatigue Syndrome: This section presents information about some of the possible medical professionals that might be involved with Chronic Fatigue Syndrome. Let’s take a look at all you need to know, in your search for that perfect doctor. The Centers for Disease Control (CDC) also say that ME/CFS might be triggered by infections or viruses. Terms of Use. However, they might indeed know of another doctor who can help you with the same. Portland Oregon Rheumatologist Doctors physician directory - Get information about systemic exertion intolerance disease (SEID) or chronic fatigue syndrome (CFS) symptoms, treatment, causes, diagnosis, and prognosis. "People with ME/CFS often may not 'look sick,' and, as such, itâs often referred to as an invisible illness â especially for patients who have more daily functioning ability," Adriane Tillman of the MEAction Network tells Bustle via email. The rheumatologist may work closely with other specialists such as orthopaedic surgeons and physical therapists. ME/CFS is *not* just being tired â itâs much, much worse. Find A Chronic Fatigue Syndrome Doctor. Inclusion in the Provider Directory does not imply recommendation or endorsement nor does omission in the Provider Directory imply WebMD disapproval.